Vertical Health Data is a non-profit association (French law of 1901) dedicated to structuring health data by disease-specific verticals. As a neutral space of trust, it brings together patients, professionals, experts and institutions around a shared requirement: that data serve the care pathway, and not the other way around.
Vertical Health Data structures health data disease by disease, placing the patient, the disease and the care pathway at the heart of an ethical, sovereign and demanding governance.
Founding message of the association · Founding framework 2026
Our framework rests on a simple reading grid. Three pillars that nothing separates in the reality of the care pathway, and that we deliberately hold together within every vertical we structure.
The person living with a disease. Their experience, their real-life pathway, their singularity. The potential role of the relative, the caregiver, the trusted support person.
This pillar establishes centrality: no health data has any legitimacy unless it serves, directly or indirectly, the person concerned or the quality of their care pathway.
The disease's own logic. Its critical moments, its treatments, its complications. Its temporality, its turning points, its points of vigilance.
This pillar forbids treatment through vague themes. Every subject we address goes through a real disease. Our founding vertical addresses arterial hypertension.
The media, flows, processing operations and technologies that document the pathway. Their quality, their interoperability, their governance. The rules of access, sharing and retention.
This pillar refuses abstraction. Here data is never treated as a stock. Always as a sensitive material, situated, useful or useless depending on its context and its use.
These three pillars structure every vertical undertaken by Vertical Health Data.
Vertical Health Data does not have a single audience. The association articulates three circles of contribution and dialogue, each with its own register, rhythm and level of commitment. This distinction ensures that the right interlocutor receives the right message, at the right time.
The founding members, the Board, the Board of Directors, and the contributors of the expert colleges. Those who produce and guarantee the association's doctrinal corpus.
What is at stake · Doctrine, governance, structuring decisionsThe active members, the college experts, the institutional partners, the technical partners. Those who bring the method to life and make it operational.
What is at stake · Production of verticals, framed cooperationThe institutions, the funders, the specialised media, the digital health stakeholders, the patient associations, the project leaders. Those with whom dialogue is established when the connection is right.
What is at stake · Public legibility, new partnershipsThe action of Vertical Health Data unfolds through five structuring functions. None of them works alone. Together, they describe what it means to be a reference third party in the field of health data.
Identify the diseases, the pathways, the stakeholders and the initiatives that deserve to be structured in depth. Choose, rather than cover everything superficially.
Assess the relevance, robustness, compliance and real value of each piece of data, each medium, each use. Distinguish what serves the pathway from what complicates it.
Create the framework of institutional recognition: committees, validations, reference publications. Give serious initiatives the standing they deserve.
Give controlled visibility to the work, the verticals, the stakeholders and the high-impact models. Bring them to light without overexposing them.
Build bridges between worlds that still cooperate poorly: the patient's lived experience, clinical rigour, data expertise, governance requirements, and deployment capability.
Vertical Health Data is an association governed by the French law of 1 July 1901. Its governance is designed to last, not to accelerate. Five elements make up its foundation.
The full statutes are available in the Observatory. Any structural change falls under an Extraordinary General Meeting.
Vertical Health Data applies an invariant sequencing principle to all of its outputs and all of its undertakings. This principle protects the quality of the corpus and the coherence of the action.
Name, qualify, distinguish, situate. No vertical, no undertaking begins without formal framing.
Test the method on a real case before any generalisation. Arterial hypertension is our first founding vertical — the pilot case of a replicable method.
Formalise what must be protected: intellectual property of the framework, partnership agreements, conditions of stewardship. No operational structure before this framing.
Deploy, at the relevant scale, with the right stakeholders, at the right time. Stewardship is the culmination, never the starting point.
This invariant applies to every vertical, every agreement, every publication of the association.
The ambition of Vertical Health Data is to become a French and European reference framework for the responsible structuring of health data, organised by disease-specific verticals.
This horizon is measured against three concrete elements: the legibility of the corpus we produce, the maturity of the verticals we launch, and the effective cooperation between stakeholders whose logics are today siloed.
We do not measure our value by the volume of our output, but by its relevance. We do not measure our influence by the number of signatures, but by the accuracy of the connections we are able to create.
Statutes, founding charter, reference notes. Our entire corpus is available to consult and download.
Card 02 · ReadArterial hypertension: our pilot case. Framing, mapping, ten dimensions of the data axis applied.
Card 03 · JoinFive paths of engagement depending on your profile: patient or relative, healthcare professional, expert, institution, partner.
Read the framework of trust
Our identity rests on a clear doctrine: governance, sobriety, non-capture and respect for health data.
